(photo P Volker)
Geez. Kind of a crazy day yesterday. And I was trying to write to you about it earlier this morning and the power was blinking and the Wifi was goofy. It was the tail end of wind and rain that hit yesterday while I was trying to navigate in the city, driving nightmare.
But the important business is the biopsy business. I wound up going in to Dr Gold’s although I got the word that the biopsy results did not come through. We decided to go with a blood test that would give us info and only take 10 days. It is the new improved blood test that was not available when we went with the biopsy a month ago. Things are changing quickly. So I ran in to give them the blood samples to get that started.
Results will be available on the 31st of the month. Getting a scan that day too so we will have beautiful brand new info. New results from the blood test and the scan for this our next meeting. But that is more waiting, geez.
But I did learn something interesting yesterday. And it may be important. The needle biopsy only probed a small portion of one of the tumors and there are many. But there was not enough living material to run the test. In other words in the area that they tried to test only maybe two percent of the mass had living cancer cells. I saw a pic of this. They were very sparsely scattered. Hmm. That may be important.
Anyway, the new test will go forward to learn if any mutation in the cancer’s DNA has occurred. That is an important thing to know to be able to choose the next treatment effort. Well, I think that I will quit there with this medical news, dreadfully boring stuff.
Thank you all for checking in on the Comments and with emails. I know that you are waiting with me through this. And this is important stuff too this connectivity that we have discovered, created and enjoyed. Thank you.
enjoyed loves, Felipé.
Hi boss,
Only hello! And yes, we are waiting with you!
Would love to wait while we walk, but that will happen when I go there for my 40 days Lent!!!!
Love you!
Cris
Cris ~ Only hello to you too! One thing that you could do with some of your forty days is make blackberry jelly to ship back home. Just a thought. Later, Felipé.x
I have never considered what the tumours are made of(apart from of us!).my understanding is that Mycosis Fungoides is the most common of the CTCL’s representing 50 percent of CTCL’s,and it usually develops in stages;patch,plaque, tumour and leukemic involvement.i’m guessing,as I did,most people with the patch or plaque stage think they have ezecma or psoriasis but they have a nasty suprise install!these people won’t be in the figures although some of it must be detected as people with stage 1a are the most common on the few websites devoted to CTCL but I’m speculating most goes undetected?I very nearly lost my left hand to these tumours although escaped minus a finger and a non functional thumb.they are hard material and don’t seem to have pus in them although they can get infected.very unpleasant things….an understatement really!I don’t seen to have any now just patches and plaques although obviously I can’t see what’s going on further inside me.
Kevan ~ all this stuff is an amazing world in itself. I am so glad that there are people and organizations working to straighten this out. Good luck with your next move. Felipé.